
--
-- Table structure for table `webform`
--

CREATE TABLE `webform` (
  `webform_id` varchar(32) NOT NULL COMMENT 'The webform id.',
  `next_serial` int(10) unsigned NOT NULL DEFAULT 1 COMMENT 'The serial number to give to the next submission to this webform.',
  PRIMARY KEY (`webform_id`,`next_serial`)
) ENGINE=InnoDB DEFAULT CHARSET=utf8mb4 COMMENT='Stores all webform data.';

--
-- Dumping data for table `webform`
--

INSERT INTO `webform` VALUES ('adherence_questionnaire',44),('contact',1),('demo_application',1),('demo_application_evaluation',1),('email_reminder',56),('mail_invitation',48),('materiality_analysis',3),('mscu_ecf_2018_academic_mscu',1),('mscu_ecf_2018_academic_mscu_init',7),('mscu_ecf_2018_non_academic_mscu',1),('mscu_ecf_2018_practising_neurolo',3),('mscu_ecf_2020',14),('mscu_ecf_2020_for_check_',2),('multi_act_framework_baseline_ana',1),('open',1),('submission_list',16),('variables_to_be_included_in_the_',1);

--
-- Table structure for table `webform_access_group_admin`
--

CREATE TABLE `webform_access_group_admin` (
  `group_id` varchar(32) NOT NULL COMMENT 'The webform access group id.',
  `uid` int(10) unsigned NOT NULL DEFAULT 0 COMMENT 'The admin user id.',
  PRIMARY KEY (`group_id`,`uid`),
  KEY `indexing` (`group_id`,`uid`)
) ENGINE=InnoDB DEFAULT CHARSET=utf8mb4 COMMENT='Stores admin associated with a webform access group.';

--
-- Dumping data for table `webform_access_group_admin`
--


--
-- Table structure for table `webform_access_group_entity`
--

CREATE TABLE `webform_access_group_entity` (
  `group_id` varchar(32) NOT NULL COMMENT 'The webform access group id.',
  `entity_type` varchar(32) NOT NULL COMMENT 'The source entity type.',
  `entity_id` varchar(32) NOT NULL COMMENT 'The source entity id.',
  `field_name` varchar(32) NOT NULL COMMENT 'The webform field name.',
  `webform_id` varchar(32) NOT NULL COMMENT 'The webform id.',
  PRIMARY KEY (`group_id`,`webform_id`,`entity_type`,`entity_id`,`field_name`),
  KEY `source_entity` (`entity_type`,`entity_id`,`field_name`,`webform_id`)
) ENGINE=InnoDB DEFAULT CHARSET=utf8mb4 COMMENT='Stores users associated with a webform access group.';

--
-- Dumping data for table `webform_access_group_entity`
--


--
-- Table structure for table `webform_access_group_user`
--

CREATE TABLE `webform_access_group_user` (
  `group_id` varchar(32) NOT NULL COMMENT 'The webform access group id.',
  `uid` int(10) unsigned NOT NULL DEFAULT 0 COMMENT 'The user id.',
  PRIMARY KEY (`group_id`,`uid`),
  KEY `indexing` (`group_id`,`uid`)
) ENGINE=InnoDB DEFAULT CHARSET=utf8mb4 COMMENT='Stores users associated with a webform access group.';

--
-- Dumping data for table `webform_access_group_user`
--


--
-- Table structure for table `webform_submission`
--

CREATE TABLE `webform_submission` (
  `sid` int(11) NOT NULL AUTO_INCREMENT,
  `webform_id` varchar(32) CHARACTER SET ascii NOT NULL COMMENT 'The ID of the target entity.',
  `uuid` varchar(128) CHARACTER SET ascii NOT NULL,
  `langcode` varchar(12) CHARACTER SET ascii NOT NULL,
  `serial` int(11) DEFAULT NULL,
  `token` varchar(255) DEFAULT NULL,
  `uri` varchar(2000) DEFAULT NULL,
  `created` int(11) DEFAULT NULL,
  `completed` int(11) DEFAULT NULL,
  `changed` int(11) DEFAULT NULL,
  `in_draft` tinyint(4) DEFAULT NULL,
  `current_page` varchar(128) DEFAULT NULL,
  `remote_addr` varchar(128) DEFAULT NULL,
  `uid` int(10) unsigned DEFAULT NULL COMMENT 'The ID of the target entity.',
  `entity_type` varchar(32) CHARACTER SET ascii DEFAULT NULL,
  `entity_id` varchar(255) DEFAULT NULL,
  `locked` tinyint(4) DEFAULT NULL,
  `sticky` tinyint(4) DEFAULT NULL,
  `notes` longtext DEFAULT NULL,
  `entity_id_block_content` varchar(255) DEFAULT NULL,
  `entity_id_comment` varchar(255) DEFAULT NULL,
  `entity_id_contact_message` varchar(255) DEFAULT NULL,
  `entity_id_file` varchar(255) DEFAULT NULL,
  `entity_id_node` varchar(255) DEFAULT NULL,
  `entity_id_path_alias` varchar(255) DEFAULT NULL,
  `entity_id_shortcut` varchar(255) DEFAULT NULL,
  `entity_id_taxonomy_term` varchar(255) DEFAULT NULL,
  `entity_id_user` varchar(255) DEFAULT NULL,
  `entity_id_menu_link_content` varchar(255) DEFAULT NULL,
  PRIMARY KEY (`sid`),
  UNIQUE KEY `webform_submission_field__uuid__value` (`uuid`),
  KEY `webform_submission_field__webform_id__target_id` (`webform_id`),
  KEY `webform_submission_field__uid__target_id` (`uid`),
  KEY `webform_submission__token` (`token`(191))
) ENGINE=InnoDB AUTO_INCREMENT=186 DEFAULT CHARSET=utf8mb4 COMMENT='The base table for webform_submission entities.';

--
-- Dumping data for table `webform_submission`
--

INSERT INTO `webform_submission` VALUES 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--
-- Table structure for table `webform_submission_data`
--

CREATE TABLE `webform_submission_data` (
  `webform_id` varchar(32) NOT NULL COMMENT 'The webform id.',
  `sid` int(10) unsigned NOT NULL COMMENT 'The unique identifier for this submission.',
  `name` varchar(128) NOT NULL COMMENT 'The name of the element.',
  `property` varchar(128) NOT NULL DEFAULT '' COMMENT 'The property of the element''s value.',
  `delta` int(10) unsigned NOT NULL DEFAULT 0 COMMENT 'The delta of the element''s value.',
  `value` mediumtext NOT NULL COMMENT 'The element''s value.',
  PRIMARY KEY (`sid`,`name`,`property`,`delta`),
  KEY `webform_id` (`webform_id`),
  KEY `sid_webform_id` (`sid`,`webform_id`)
) ENGINE=InnoDB DEFAULT CHARSET=utf8mb4 COMMENT='Stores all submitted data for webform submissions.';

--
-- Dumping data for table `webform_submission_data`
--

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leadership of EPI-Cluster comprises 10 internationally-recognized scientists and clinicians in the field and the leaders of the seven projects that came together under the EpiXchange conference as well as leaders from patient and professional organisations. The EPI-Cluster is led by a chair and a co-chair.\r\nEPI-Cluster plans to create 4 subgroups. These subgroups will coordinate the 3 remaining EBRA activities of the EPI-Cluster. The planned subgroups are:  \r\n(1) Synthesis: Planning meetings and support the development of the programme for a European Forum on Epilepsy.  \r\n(2) Policy & sustainability: Agreeing key research challenges, potential funding opportunities for EPI-Cluster community. \r\n(3) Innovation & industry: Responsible for contacting and engaging with SMEs and Pharma. \r\n(4) Data and research infrastructure: Coordinating interactions with partners such as HBP and supporting collaborations using our existing resources (e.g. biosamples ).\r\nEach subgroup will be led by 1 or 2 leadership members. This task is currently ongoing.  \r\n'),('adherence_questionnaire',53,'12_do_you_have_a_procedure_that_describes_the_roles_and_responsi','',0,''),('adherence_questionnaire',53,'14_2_could_you_provide_some_documentation_in_that_context_','',0,'134'),('adherence_questionnaire',53,'14_do_you_have_a_collective_action_plan_in_place_in_order_to_ach','',0,'Yes'),('adherence_questionnaire',53,'15_please_describe','',0,''),('adherence_questionnaire',53,'16_when_establishing_the_governance_boards_do_you_take_into_acco','',0,''),('adherence_questionnaire',53,'17_please_describe_the_mechanisms_by_which_you_ensure_a_balance_','',0,''),('adherence_questionnaire',53,'18_when_establishing_the_governance_boards_do_you_ensure_the_par','',0,''),('adherence_questionnaire',53,'19_please_describe_the_mechanisms_by_which_you_ensure_a_balance_','',0,''),('adherence_questionnaire',53,'20_when_establishing_the_governance_boards_do_you_protect_the_in','',0,''),('adherence_questionnaire',53,'21_please_describe_the_mechanisms_by_which_you_ensure_a_balance_','',0,''),('adherence_questionnaire',53,'22_when_establishing_the_governance_boards_do_you_maintain_commi','',0,''),('adherence_questionnaire',53,'23_please_describe_the_mechanisms_by_which_you_ensure_a_balance_','',0,''),('adherence_questionnaire',53,'27_did_you_differentiate_the_level_of_engagement_of_these_stakeh','',0,'Yes'),('adherence_questionnaire',53,'28_do_you_have_a_stakeholder_engagement_strategy_in_place_both_w','',0,'No'),('adherence_questionnaire',53,'29_describe_the_methodology_that_is_adopted_in_order_to_put_in_p','',0,''),('adherence_questionnaire',53,'2_1_please_provide_the_documents_related_to_the_agenda','',0,'137'),('adherence_questionnaire',53,'30_did_you_perform_a_consultation_process_in_order_to_understand','',0,'Yes'),('adherence_questionnaire',53,'31_did_you_carry_out_an_analysis_to_identify_stakeholders_challe','',0,'No'),('adherence_questionnaire',53,'33_with_regard_to_stakeholder_engagement_do_you_have_a_process_t','',0,''),('adherence_questionnaire',53,'34_please_describe','',0,''),('adherence_questionnaire',53,'35_do_you_have_a_process_in_place_to_train_stakeholders_in_order','',0,''),('adherence_questionnaire',53,'36_please_describe_the_process_of_training_stakeholders_e_g_the_','',0,''),('adherence_questionnaire',53,'39_do_you_have_a_team_manager_dedicated_to_coordinate_the_patien','',0,'No'),('adherence_questionnaire',53,'40_do_you_have_indicators_to_measure_the_return_on_patient_engag','',0,'No'),('adherence_questionnaire',53,'41_do_you_plan_ad_hoc_training_programs_related_to_the_patient_e','',0,'No'),('adherence_questionnaire',53,'42_do_you_have_mechanism_in_place_to_recognize_and_reward_patien','',0,'No'),('adherence_questionnaire',53,'43_do_you_have_dedicated_resources_budget_for_patient_engagement','',0,'No'),('adherence_questionnaire',53,'44_do_you_perform_an_ethical_assessment_of_your_patient_engageme','',0,'No'),('adherence_questionnaire',53,'48_if_yes_do_you_have_a_plan_that_defines_the_following_please_t','',0,'Definition and composition of Working Groups, which might practically deal with the implementation of such actions'),('adherence_questionnaire',53,'48_if_yes_do_you_have_a_plan_that_defines_the_following_please_t','',1,'Information regarding the organization \"touch points meetings\" (such as periodic events or webinars) '),('adherence_questionnaire',53,'49_do_you_have_a_cost_management_process_in_place_e_g_a_defined_','',0,'Yes'),('adherence_questionnaire',53,'50_do_you_ensure_that_the_internal_team_has_solid_skills_to_carr','',0,'Yes'),('adherence_questionnaire',53,'51_do_you_maintain_accountability_over_time_keeping_track_of_exp','',0,'Yes'),('adherence_questionnaire',53,'52_please_describe_or_provide_documentation_','',0,'EBRA supports the cluster keep track of expenses'),('adherence_questionnaire',53,'53_do_you_have_a_process_in_place_to_ensure_that_there_is_a_righ','',0,'No'),('adherence_questionnaire',53,'54_please_explain_','',0,''),('adherence_questionnaire',53,'55_have_you_developed_a_contingency_plan_risk_management_approac','',0,'No'),('adherence_questionnaire',53,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',0,'Patients'),('adherence_questionnaire',53,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',1,'Patients organizations, patient associations, advocacy organizations, etc.'),('adherence_questionnaire',53,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',2,'Policy makers EU institutions; national, regional and local policy makers'),('adherence_questionnaire',53,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',3,'Industry companies developing and selling health products (drugs, devices, applications, etc.) and services sector'),('adherence_questionnaire',53,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',4,'Infrastructure/data'),('adherence_questionnaire',53,'5_3_1_please_describe_that_procedure','',0,''),('adherence_questionnaire',53,'5_4_do_the_stakeholder_participating_in_the_governance_of_the_in','',0,''),('adherence_questionnaire',53,'5_8_1b_or_provide_us_with_the_relevant_documentation_','',0,''),('adherence_questionnaire',53,'6_5_1_could_you_please_provide_the_report_of_this_analysis_','',0,''),('adherence_questionnaire',53,'7_do_you_engage_patients_in_your_research_innovation_r_i_in_one_','',0,'No'),('adherence_questionnaire',53,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',0,'Patients'),('adherence_questionnaire',53,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',1,'Care providers, health and social care organizations and professionals (doctors, nurses, etc.)'),('adherence_questionnaire',53,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',2,'Policy makers EU institutions; national, regional and local policy makers'),('adherence_questionnaire',53,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',3,'Industry companies developing and selling health products (drugs, devices, applications, etc.) and services sector'),('adherence_questionnaire',53,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',4,'Research and education organizations Research organizations; Universities; Education providers; Foundations; Other research projects'),('adherence_questionnaire',53,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',5,'Infrastructure/ data '),('adherence_questionnaire',53,'are_the_monitoring_and_the_assessment_systems_and_the_related_in','',0,''),('adherence_questionnaire',53,'beyond_the_stakeholders_involved_in_the_governance_structure_hav','',0,'Yes'),('adherence_questionnaire',53,'can_you_provide_any_of_those_reports_','',0,''),('adherence_questionnaire',53,'could_you_please_describe_how_you_have_defined_the_common_object','',0,'The first activity of the EPI-Cluster was a meeting focused on reaching broad consensus on the cooperation among the different member organisations of EPI-Cluster and the identification of the main objectives and actions. In addition to the leadership of EPI-Cluster composed of the coordinators of multiple large-scale epilepsy research projects along with the EPI-Care clinical network and professional and patient-representative organisations, the meeting was attended by a number of stakeholders from outside the EPI-Cluster leadership.  These included coordinators of other European epilepsy projects, experts in big data, pre-clinical and clinical data sharing organisations, patient organisations and industry. '),('adherence_questionnaire',53,'does_this_assessment_include_indicators_related_to_the_patient_d','',0,''),('adherence_questionnaire',53,'does_this_assessment_involve_stakeholders_in_the_gathering_of_da','',0,''),('adherence_questionnaire',53,'do_you_communicate_with_stakeholders_about_the_progress_of_the_i','',0,'Yes'),('adherence_questionnaire',53,'do_you_have_an_agenda_defining_the_priority_areas_mid_term_and_l','',0,'Yes'),('adherence_questionnaire',53,'do_you_have_a_monitoring_system_for_the_implementation_of_the_ac','',0,'Yes'),('adherence_questionnaire',53,'do_you_have_a_process_in_place_to_gather_feedback_from_external_','',0,'Yes'),('adherence_questionnaire',53,'do_you_have_a_review_process_in_place_to_improve_the_initiative_','',0,'Yes'),('adherence_questionnaire',53,'do_you_publish_a_progress_report_','',0,'Yes'),('adherence_questionnaire',53,'have_you_defined_an_assessment_system_that_allow_to_measure_init','',0,'No'),('adherence_questionnaire',53,'have_you_developed_a_shared_vision_mission_for_your_initiative_','',0,'Yes'),('adherence_questionnaire',53,'have_you_established_a_governance_structure_for_the_ms_care_unit','',0,'Yes'),('adherence_questionnaire',53,'initiativeid','',0,''),('adherence_questionnaire',53,'is_this_review_process_strictly_internal_or_is_there_a_third_par','',0,'EBRA supports the cluster in reviewing the initiative\'s performance and practices'),('adherence_questionnaire',53,'nodeid','',0,'593'),('adherence_questionnaire',53,'or_provide_a_copy_of_that_procedure','',0,''),('adherence_questionnaire',53,'or_provide_us_with_the_relevant_documentation_','',0,''),('adherence_questionnaire',53,'or_provide_us_with_the_relevant_documentation_2','',0,''),('adherence_questionnaire',53,'please_describe3','',0,'Consensus report (following 1st activity) was shared with external stakeholders inviting them to provide feedback. '),('adherence_questionnaire',53,'please_describe_how_the_measurement_is_linked_to_the_objectives_','',0,''),('adherence_questionnaire',53,'please_describe_how_you_communicate_with_the_stakeholders_on_pro','',0,'Via mail and via the EBRA website: Epi-Cluster section'),('adherence_questionnaire',53,'please_provide_relevant_documents_if_any','',0,''),('adherence_questionnaire',53,'please_provide_the_mission_statment_and_related_documents_to_the','',0,'136'),('adherence_questionnaire',53,'pleas_describe_the_process_provide_documentation_that_allows_the','',0,'EBRA organises bi-monthly meetings with the initiative\'s coordinators. Objectives are revised. The initiative receives advice and activities are finetuned.\r\nThe EPICLUSTER leadership and external stakeholders review the initiative\'s deliverables.'),('adherence_questionnaire',53,'ror_provide_us_with_the_relevant_documentation_','',0,''),('adherence_questionnaire',53,'what_is_the_frequency_of_publishing_progress_reports_','',0,'Every 6 months'),('adherence_questionnaire',53,'which_of_the_following_stakeholders_took_part_in_defining_the_ob','',0,'Patients organizations, patient associations, advocacy organizations, etc.'),('adherence_questionnaire',53,'which_of_the_following_stakeholders_took_part_in_defining_the_ob','',1,'Care providers, health and social care organizations and professionals (doctors, nurses, etc.)'),('adherence_questionnaire',53,'which_of_the_following_stakeholders_took_part_in_defining_the_ob','',2,'Industry companies developing and selling health products (drugs, devices, applications, etc.) and services sector'),('adherence_questionnaire',53,'which_of_the_following_stakeholders_took_part_in_defining_the_ob','',3,'Research and education organizations Research organizations; Universities; Education providers; Foundations; Other research projects'),('adherence_questionnaire',53,'which_of_the_following_stakeholders_took_part_in_defining_the_ob','',4,'Infrastructure/data sharing '),('adherence_questionnaire',53,'_10_which_of_the_following_stakeholders_are_involved_in_the_gove','',0,'Care providers, health and social care organizations and professionals (doctors, nurses, etc.)'),('adherence_questionnaire',53,'_10_which_of_the_following_stakeholders_are_involved_in_the_gove','',1,'Research and education organizations Research organizations; Universities; Education providers; Foundations; Other research projects'),('adherence_questionnaire',53,'_have_you_identified_the_intended_beneficiaries_of_your_research','',0,'Yes'),('adherence_questionnaire',54,'11_could_you_please_describe_the_different_bodies_in_your_govern','',0,'Executive Committee -- final strategy and decision-making body. Comprised of CEOs of Managing Member organizations, Chair of the Scientific Steering Committee, scientific staff leads of Managing Member organizations.  Others at the committee chair request.\r\nScientific Steering Committee -- development and oversight of research initiatives.\r\nIndustry Forum -- advises Scientific Committee on science and development of treatments\r\nPeople Affected by MS Engagement Coordination Team -- ensures the the active input of perspectives and experiences of people affected by MS in all Alliance work\r\nFundraising and Communications Work Team -- develops and implements plans to engage stakeholders and raise resources worldwide'),('adherence_questionnaire',54,'12_do_you_have_a_procedure_that_describes_the_roles_and_responsi','',0,'Yes'),('adherence_questionnaire',54,'14_2_could_you_provide_some_documentation_in_that_context_','',0,'133'),('adherence_questionnaire',54,'14_do_you_have_a_collective_action_plan_in_place_in_order_to_ach','',0,'Yes'),('adherence_questionnaire',54,'15_please_describe','',0,''),('adherence_questionnaire',54,'16_when_establishing_the_governance_boards_do_you_take_into_acco','',0,'Yes'),('adherence_questionnaire',54,'17_please_describe_the_mechanisms_by_which_you_ensure_a_balance_','',0,'The Executive Committee via the Chair has the authority to include any stakeholder that could add perspective and value to ensure maximum benefit is achieved.  For instance, smaller MS organizations are included on the committee.  '),('adherence_questionnaire',54,'18_when_establishing_the_governance_boards_do_you_ensure_the_par','',0,'Yes'),('adherence_questionnaire',54,'19_please_describe_the_mechanisms_by_which_you_ensure_a_balance_','',0,'The People Affected by MS Engagement Coordination Team reports directly to the Executive Committee to ensure the experiences and perspectives of people affected by MS, many of whom are disadvantaged, are heard.  '),('adherence_questionnaire',54,'20_when_establishing_the_governance_boards_do_you_protect_the_in','',0,'Yes'),('adherence_questionnaire',54,'21_please_describe_the_mechanisms_by_which_you_ensure_a_balance_','',0,'Balance is ensured as recommendations and perspectives come from the various committees and work groups of the Alliance each of which is designed by terms of reference to have broad stakeholder participation and decision-making.'),('adherence_questionnaire',54,'22_when_establishing_the_governance_boards_do_you_maintain_commi','',0,'Yes'),('adherence_questionnaire',54,'23_please_describe_the_mechanisms_by_which_you_ensure_a_balance_','',0,'Please see Terms of Reference for Executive Committee already provided.'),('adherence_questionnaire',54,'27_did_you_differentiate_the_level_of_engagement_of_these_stakeh','',0,'Yes'),('adherence_questionnaire',54,'28_do_you_have_a_stakeholder_engagement_strategy_in_place_both_w','',0,'Yes'),('adherence_questionnaire',54,'29_describe_the_methodology_that_is_adopted_in_order_to_put_in_p','',0,'A variety of methods are used including: Scientific Congresses and meetings; establishment of work groups of international experts on specific topics to develop recommendations and plans;  Industry Forum meetings including leading subject matter experts; global outreach to donors and people affected by MS through webcasts where input is sought; and partnership with MULTI-ACT to increase stakeholder engagement and rigor with a special focus on people affected by MS.'),('adherence_questionnaire',54,'2_1_please_provide_the_documents_related_to_the_agenda','',0,'129'),('adherence_questionnaire',54,'30_did_you_perform_a_consultation_process_in_order_to_understand','',0,'Yes'),('adherence_questionnaire',54,'31_did_you_carry_out_an_analysis_to_identify_stakeholders_challe','',0,'No'),('adherence_questionnaire',54,'33_with_regard_to_stakeholder_engagement_do_you_have_a_process_t','',0,'Yes'),('adherence_questionnaire',54,'34_please_describe','',0,'Meetings are designed with consideration to the symptoms and varying abilities of people affected by MS.  Special travel planning and professional care assistance is provided as needed. '),('adherence_questionnaire',54,'35_do_you_have_a_process_in_place_to_train_stakeholders_in_order','',0,'Yes'),('adherence_questionnaire',54,'36_please_describe_the_process_of_training_stakeholders_e_g_the_','',0,'Training for the People Affected by MS Engagement Coordination Team has been provided and is ongoing.'),('adherence_questionnaire',54,'38_in_which_of_the_7_steps_research_innovation_r_i_path_do_you_e','',0,'1. Breaking down boundaries '),('adherence_questionnaire',54,'38_in_which_of_the_7_steps_research_innovation_r_i_path_do_you_e','',1,'2. Research priorities'),('adherence_questionnaire',54,'38_in_which_of_the_7_steps_research_innovation_r_i_path_do_you_e','',2,'3. Steering institutions'),('adherence_questionnaire',54,'38_in_which_of_the_7_steps_research_innovation_r_i_path_do_you_e','',3,'4. Design & plan'),('adherence_questionnaire',54,'38_in_which_of_the_7_steps_research_innovation_r_i_path_do_you_e','',4,'5. Research execution'),('adherence_questionnaire',54,'38_in_which_of_the_7_steps_research_innovation_r_i_path_do_you_e','',5,'6. Evaluation'),('adherence_questionnaire',54,'38_in_which_of_the_7_steps_research_innovation_r_i_path_do_you_e','',6,'7. Translation to community'),('adherence_questionnaire',54,'39_do_you_have_a_team_manager_dedicated_to_coordinate_the_patien','',0,'Yes'),('adherence_questionnaire',54,'40_do_you_have_indicators_to_measure_the_return_on_patient_engag','',0,'No'),('adherence_questionnaire',54,'41_do_you_plan_ad_hoc_training_programs_related_to_the_patient_e','',0,'Yes'),('adherence_questionnaire',54,'42_do_you_have_mechanism_in_place_to_recognize_and_reward_patien','',0,'Yes'),('adherence_questionnaire',54,'43_do_you_have_dedicated_resources_budget_for_patient_engagement','',0,'Yes'),('adherence_questionnaire',54,'44_do_you_perform_an_ethical_assessment_of_your_patient_engageme','',0,'Yes'),('adherence_questionnaire',54,'48_if_yes_do_you_have_a_plan_that_defines_the_following_please_t','',0,'Specific actions that different stakeholders commit to implement in order to achieve the objectives of the initiative; '),('adherence_questionnaire',54,'48_if_yes_do_you_have_a_plan_that_defines_the_following_please_t','',1,'Definition and composition of Working Groups, which might practically deal with the implementation of such actions'),('adherence_questionnaire',54,'48_if_yes_do_you_have_a_plan_that_defines_the_following_please_t','',2,'Definition of clear and measurable targets'),('adherence_questionnaire',54,'48_if_yes_do_you_have_a_plan_that_defines_the_following_please_t','',3,'Presentation of clear project timeline,including deadlines in order to allow participants to hold each other accountable'),('adherence_questionnaire',54,'49_do_you_have_a_cost_management_process_in_place_e_g_a_defined_','',0,'Yes'),('adherence_questionnaire',54,'50_do_you_ensure_that_the_internal_team_has_solid_skills_to_carr','',0,'Yes'),('adherence_questionnaire',54,'51_do_you_maintain_accountability_over_time_keeping_track_of_exp','',0,'Yes'),('adherence_questionnaire',54,'52_please_describe_or_provide_documentation_','',0,'Quarterly accounting and reporting to the Executive Committee of the approved budget for a fiscal year.   Executive Committee approves budget annually.  Budget recommendations are developed by staff.  Managing members are responsible for contributing funds as per the Memorandum or Understanding that forms and sustains the Alliance.'),('adherence_questionnaire',54,'53_do_you_have_a_process_in_place_to_ensure_that_there_is_a_righ','',0,'Yes'),('adherence_questionnaire',54,'54_please_explain_','',0,'Committees and work teams make recommendations to the Executive Committee.  Scope of work and associated decisions/timelines are determined annually through the plan of operations.'),('adherence_questionnaire',54,'55_have_you_developed_a_contingency_plan_risk_management_approac','',0,'Yes'),('adherence_questionnaire',54,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',0,'Patients'),('adherence_questionnaire',54,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',1,'Patients organizations, patient associations, advocacy organizations, etc.'),('adherence_questionnaire',54,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',2,'Care providers, health and social care organizations and professionals (doctors, nurses, etc.)'),('adherence_questionnaire',54,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',3,'Industry companies developing and selling health products (drugs, devices, applications, etc.) and services sector'),('adherence_questionnaire',54,'5_1_could_you_please_describe_the_different_bodies_in_your_gover','',4,'Research and education organizations Research organizations; Universities; Education providers; Foundations; Other research projects'),('adherence_questionnaire',54,'5_3_1_please_describe_that_procedure','',0,'Voting members of Executive Committee are the CEOs of the Managing Member MS Organizations. All committees and work teams provide recommendations to them for final approval.  Please TORs attached.'),('adherence_questionnaire',54,'5_4_do_the_stakeholder_participating_in_the_governance_of_the_in','',0,'No'),('adherence_questionnaire',54,'5_8_1b_or_provide_us_with_the_relevant_documentation_','',0,''),('adherence_questionnaire',54,'6_5_1_could_you_please_provide_the_report_of_this_analysis_','',0,''),('adherence_questionnaire',54,'7_do_you_engage_patients_in_your_research_innovation_r_i_in_one_','',0,'Yes'),('adherence_questionnaire',54,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',0,'Patients'),('adherence_questionnaire',54,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',1,'Patients organizations, patient associations, advocacy organizations, etc.'),('adherence_questionnaire',54,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',2,'Care providers, health and social care organizations and professionals (doctors, nurses, etc.)'),('adherence_questionnaire',54,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',3,'Policy makers EU institutions; national, regional and local policy makers'),('adherence_questionnaire',54,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',4,'Industry companies developing and selling health products (drugs, devices, applications, etc.) and services sector'),('adherence_questionnaire',54,'7_please_indicate_which_of_the_following_stakeholders_are_the_in','',5,'Research and education organizations Research organizations; Universities; Education providers; Foundations; Other research projects'),('adherence_questionnaire',54,'are_the_monitoring_and_the_assessment_systems_and_the_related_in','',0,''),('adherence_questionnaire',54,'beyond_the_stakeholders_involved_in_the_governance_structure_hav','',0,'Yes'),('adherence_questionnaire',54,'can_you_provide_any_of_those_reports_','',0,''),('adherence_questionnaire',54,'could_you_please_describe_how_you_have_defined_the_common_object','',0,'The Scientific Steering Committee of the International Progressive MS Alliance has identified the priorities and a course of work to achieve the priorities.  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