 ms care unit baseline analysis ms care unit baseline analysis criteria 1 vision and agenda 1 have you developed a shared vision mission for your initiative yes 11 please provide the mission statement and related documents to the mission empty 2 do you have an agenda defining the priority areas midterm and longterm objectives and a set of actions to achieve the objectives of the initiative yes 21 please provide the documents related to the agenda msjournalthemultiplesclerosiscareunit1352458518807 3 could you please describe how you have defined the common objectives priority areas and set of actions empty 31 which of the following stakeholders took part in defining the objectives priorities and set of actions for your initiative empty 4 have you identified the intended beneficiaries of your research initiative yes 41 please indicate which of the following stakeholders are the intended beneficiaries whom you have identified patients patients organizations patient associations advocacy organizations etc society individual citizens civil society organizations and networks payers and purchasers public or private entities responsible for underwriting the costs of health care care providers health and social care organizations and professionals doctors nurses etc industry companies developing and selling health products drugs devices applications etc and services sector criteria 2 participatory governance 5 have you established a governance structure for your research initiative yes 51 could you please describe the different bodies in your governance eg boards committees working groups teams others in your research initiative and describe their functions and composition there is a governance structure established 2 coordinators cochairs a working group which defined the characteristics of a ms care unit the general assembly all partners of the multi stakeholder initiative the executive board 52 which of the following stakeholders are involved in the governance board patients care providers health and social care organizations and professionals doctors nurses etc policy makers eu institutions national regional and local policy makers industry companies developing and selling health products drugs devices applications etc and services sector research and education organizations research organizations universities education providers foundations other research projects 53 do you have a procedure that describes the roles and responsibilities of all or some of the stakeholders and decision making processes no 54 could the stakeholders have different decision power yes 541 please describe stakeholders have different decision power the ecf board has decision making power there is an ecf ms initiative advisory board 55 when establishing the governance boards do you take into account diversity factors such as gender sector geographical educational background language no 56 when establishing the governance boards do you ensure the participation of disadvantaged stakeholders no 57 when establishing the governance boards do you protect the integrity and multistakeholder nature of the initiative and ensure that selfinterest of stakeholders does not prevail on collective decisionmaking processes no 58 when establishing the governance boards do you maintain commitment and ownership among the participating stakeholders no criteria 3 effective stakeholder engagement 6 beyond the stakeholders involved in the governance structure have you identified other stakeholders who might be influenced or might influence the initiative yes 61 please describe these stakeholders considering the classification of criteria 2 patients patients organizations patient associations advocacy organizations etc payers and purchasers public or private entities responsible for underwriting the costs of health care industry companies developing and selling health products drugs devices applications etc and services sector stakeholders dedicated to create a culture to effect and sustain change eg training and development of the needed competencies 62 did you differentiate the level of engagement of these stakeholders ie involved in specific activities of the initiative such as research group consulted informed according to their relevance to the initiative and other specific characteristics no 63 do you have a stakeholder engagement strategy in place both with regard to stakeholders involved in the governance and external stakeholders no 64 did you perform a consultation process in order to understand the needs expectations and challenges of the stakeholders involved in the initiative in terms of their participation in the initiative both with regard to stakeholders involved in the governance and external stakeholders no 65 did you carry out an analysis to identify stakeholders challenges and barriers to guarantee genuine participation no 66 with regard to stakeholder engagement do you have a process to guarantee a fair and equitable process that takes into account the limitations that participants might encounter eg cognitive impairment behavioral issues fatigue no 67 do you have a process in place to train stakeholders in order to allow their genuine and balanced participation no 7 do you engage patients in your research innovation r i in one or more of the following steps breaking down boundaries research priorities steering institutions design plan research execution evaluation translation to community yes 71 please select the steps in which you engage patiens 4 design plan 5 research execution 7 translation to community 8 do you have a team manager dedicated to coordinate the patient engagement no 9 do you have indicators to measure the return on patient engagement for each stakeholder involved in your initiative no 10 do you plan adhoc training programs related to the patient engagement including scope and actions yes 11 do you have mechanism in place to recognize and reward patients no 12 do you have dedicated resources budget for patient engagement no 13 do you perform an ethical assessment of your patient engagement strategy and of its implementation no criteria 4 efficient management and coordination of the initiative 14 do you have a collective action plan in place in order to achieve the objectives of the initiative yes 141 do you have a plan that defines the following please tick as appropriate specific actions that different stakeholders commit to implement in order to achieve the objectives of the initiative definition of clear and measurable targets presentation of clear project timeline including deadlines in order to allow participants to hold each other accountable 142 could you provide some documentation in that context  msjournalthemultiplesclerosiscareunit1352458518807 15 do you have a cost management process in place eg a defined budget a cost analysis that ensures that the initiative has enough resources to reach its objectives no 16 do you ensure that the internal team has solid skills to carry out the activities of the initiative yes 17 do you maintain accountability over time keeping track of expenses and revenues no 18 do you have a process in place to ensure that there is a right balance between an efficient management process and the opportunities for engaging a wide range of participants examples you have defined rules to take final decision in case a discussion among governance body s member has run aground measures to decrease interdependency between activities measures to increase robustness etc no 19 have you developed a contingency plan risk managment approach no criterion 5 coaccountability assessment 20 do you have a monitoring system for the implementation of the actions of the initiative and the performance of the initiative itself ongoing no 21 have you defined an assessment system that allow to measure initiative s longterm impact expost yes 211 does this assessment involve stakeholders in the gathering of data and information empty 212 does this assessment include indicators related to the patient dimension yes 213 are the monitoring and the assessment systems and the related indicators linked to the objectives of the initiative link with criteria 1 no 214 please describe how the measurement is linked to the objectives link with criteria 1 empty 22 do you publish a progress report no 23 do you communicate with stakeholders about the progress of the initiative no 24 do you have a review process in place to improve the initiative s performance and practices based on the results of the monitoring no 25 do you have a process in place to gather feedback from external stakeholders and the public for example a section on the website for public consultation organization of specific events etc no admin thu 2132020 1628  